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Family to bring1 awareness to Rett Syndrome
News
April 4, 2024
Family to bring1 awareness to Rett Syndrome
By LADONNA RHODES STAFF WRITER,

Rett Syndrome currently has no cure and one local family is struggling to understand this complex neurodevelopmental disorder that has affected their child.

Elaina Donahue was a little over a year old when doctors confirmed that she had this rare genetic disorder that affects brain development, resulting in severe physical and cognitive impairments.

It was extremely hard on her mom and dad, Landon and Lexi Donahue, but it made her grandparents, Mary Whittle and Jay Hayes, want to learn more about this terrible disease and bring awareness to others.

“We knew something was wrong because she had missed a lot of milestones, like walking, talking and not gaining weight,” Whittle said. “We thought it might be autism but when we took her to see some doctors, they told us she had GI issues and was highly allergic to dairy. Then they did three different scopes and decided it was something even more serious. That’s when they sent us to a genetics doctor that did bloodwork and had it sent to the Mayo Clinic. After six weeks the clinic called us and said that it was Rett Syndrome and that she would have to always have fulltime care. They also told us that she would probably start having seizures by age three, which she just recently turned. The doctor described the stages as sporadic because it could be more serious in some children and different in others.”

Rett Syndrome predominantly occurs in females, and generally only one in 10,000 births.

It was first described by Austrian pediatrician Andreas Rett in 1966 and symptoms typically manifest between 6-18 months of age. These symptoms include developmental regression, loss of purposeful hand skills, impaired communication abilities, repetitive hand movements such as hand-wringing or clapping, breathing abnormalities, seizures, and motor abnormalities such as ataxia or apraxia.

“Rett Syndrome is a terrible disease that no one in our area has any idea about and we want to change that. We are heartbroken that Elaina will probably never talk or more than likely lose her ability to talk and so much more. A feeding tube is more than likely in the future and so many hospital stays and visits. Right now Oklahoma doesn’t even have a doctor who treats Rett’s, so we have to travel to Ft. Worth to see a doctor. She has numerous other doctors that she has to see in Oklahoma too. Rett’s is different every day. She could wake up tomorrow having seizures or not be able to ever walk again. This is why my husband, Jay Hayes, and I have set out on a mission to bring awareness to this disease and hopefully they can find a cure someday.”

Currently, there is no cure for Rett Syndrome. Treatment focuses on managing symptoms and providing supportive care to improve the individual’s quality of life. This may include physical therapy, occupational therapy, speech therapy, behavioral interventions, and medications to alleviate symptoms such as seizures or sleep disturbances.

“We are now planning a Rett Syndrome Awareness Walk/ 5K on Oct 5 at the Checotah Sports Complex. We hope to share more about Elaina’s journey and want to encourage the community to come out and support her.”

Mary Isham retires from USPS
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Mary Isham retires from USPS
By LADONNA RHODES STAFF WRITER 
May 8, 2025
Mary Isham retired last week after 20 years with the Checotah Post Office. She started her career with USPS Dec 25, 2004. “I was a stay-at-home mom of four kids until my youngest started school,” Isha...
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Community invited to Memorial Day Service at Greenlawn Cemetery
May 8, 2025
Honoring All Veterans Friday, May 23 at 5 p.m. Veterans Park in Checotah Free Hotdog & Hamburgers Games and Fellowship Compliments of the McIntosh County DAV The DAV Chapter 3 Mc-Intosh County will ho...
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Checotah Schools Dates to Remember
May 8, 2025
May 9 – Kindergarten Graduation May 16 – CIS Track Meet on Football Field May 16 - 9th-12th Awards Assembly at 9 a.m.-10:30 a.m. at PAC May 16 – Emerson Ramsey Talent Show (MS/HS) from 1:30 -2:30 p.m....
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Early voting May 8, 9
May 8, 2025
On May 13 there will be a general election for State Senate District 8 and for Green Country Tech Center Proposition. Early voting for those two elections will be at the Mc-Intosh County Courthouse fr...
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Pooches paraded at Art and Bark in the Park
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Pooches paraded at Art and Bark in the Park
By LADONNA RHODES STAFF WRITER 
May 8, 2025
The first annual Art and Bark in the Park presented by the Checotah Art Guild was a great success! Visitors had fun choosing outfits and accessories to put on their dogs from the large selection provi...
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Journalism edged out by Sovereignty in the Kentucky Derby
May 8, 2025
The Kentucky Derby was a soggy but sensational race this year as Journalism and Sovereignty went neck and neck to a sloppy finish with Sovereignty taking the crown. Fulfilling a dream decades in the m...
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Lake 10 feet above normal, and rising
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Lake 10 feet above normal, and rising
By JERRY FINK MANAGING EDITOR 
May 8, 2025
Water release rate: 39,429 cubic feet per second More than seven inches of rain have fallen during the past week. That, coupled with severe rainfall north and west of McIntosh County, has swollen the ...
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Checotah Band Spring Concert and Spaghetti Dinner Fundraiser May 8
News
Checotah Band Spring Concert and Spaghetti Dinner Fundraiser May 8
May 8, 2025
The Checotah Band Spring Concert is May 8 and will be a Spaghetti Dinner Fundraiser. Dinner will be served at 5 p.m. in the HS Cafeteria and then the concert begins at 6 p.m. in the PAC. The bands hav...
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Eastern Oklahoma Library System receives $20,000 grant
May 8, 2025
MUSKOGEE – The Eastern Oklahoma Library System is pleased to announce it has received a $20,000 grant from the Carolyn Watson Rural Oklahoma Community Foundation Fund at the Oklahoma City Community Fo...
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Olivia Shackelford receives Youth Prevention Award
News
Olivia Shackelford receives Youth Prevention Award
By LADONNA RHODES STAFF WRITER 
May 8, 2025
Olivia Shackelford became a member of Youth Action for Health Leadership (YAHL) to make a difference in her school and oh what a difference she had made! Olivia affectionately known as Livy to her fri...
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News
Free 5K and Community Fun Run
May 8, 2025
Join the fun on Saturday, May 24 for a free 5k and Community Fun Run, hosted by Neighbors Building Neighborhoods. Preregister for “Just Glow With It” to save your spot and for a free event t-shirt and...
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